Growing up, I always felt a bit different. But with CF consuming so much of my life, I didn’t have the chance to explore it until Trikafta® stabilized my health. That’s when I was finally able to get ...

Becoming friends with Maddie, who has cystic fibrosis, inspired me to begin raising CF awareness and fundraising from a young age. Now I’m eager to make a larger impact with the platform I have since ...

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited ...

I imagine most people have vivid memories of the first date they went on with their spouse. Emily took me on a hike through Will Rogers State Park in Los Angeles. It was a perfect, blue-sky, Southern ...

Dear Members of the Maryland Prescription Drug Affordability Board: On behalf of the people living with cystic fibrosis in Maryland, the Cystic Fibrosis Foundation writes to provide comments on the ...

Although biological fatherhood after a lung transplant is certainly possible, many commonly prescribed anti-rejection medications have been known to cause birth defects. For this reason, some ...

Dear Secretary Yellen and Secretary Becerra: On behalf of the nearly 1,700 people living with cystic fibrosis in New York, the Cystic Fibrosis Foundation appreciates the opportunity to submit comments ...

Dear Secretary Becerra and Administrator Brooks-LaSure: The Cystic Fibrosis Foundation thanks the Centers for Medicare and Medicaid Services (CMS) for the opportunity to respond to the Medicare and ...

Our family’s journey has been a rollercoaster of challenges and triumphs since we welcomed our goofy boy, Owen, into the world. Now 20 months old, Owen’s life has already been marked by medical ...

Air of Optimism is a six-episode collection of interviews with my incredible friend Bernadette. Bern was born with cystic fibrosis in 1967, when very little was known about the disease. I have been ...